Monday, April 29, 2013

The scene where I left the threads of what I thought was sanity

Twenty five months later I could reset this room I think pretty accurately with the people that were there responding to the code on Ailish.  I should probably say bodies as I don't remember all the faces.  I do remember the things being said at the time maybe not all the orders being given but moreso the inane conversation occurring between the staff.  Even the political if you can call it jockeying.  

The room was overflowing with people with one wall covered with shell shocked looking interns or students.  The ICU resident was at the end of the bed calling the shots.  The attending was on the far side of the bed interjecting when necessary.  When the ortho resident wasn't pounding on my daughter's chest he was at the end of the bed awaiting another turn to try and save her.  While he performed cpr his gaze would meet mine with his being filled with fear, worry and guilt.  There was a respiratory therapist who despite continually being told her cpr was not efficient was unable to do better though no one pulled her off.  There were three anesthetists intubating Ailish shooting the breeze as to why one of them was there were they on call etc.   WTH?  There was the poor doctor who got called into the room immediately before Ailish crashed who knew nothing of my child but was asked to come in to assess.  She got in just in time for the code button to be pushed.  She stood beside me ensuring that I wanted to remain in the room and in learning I did inquired as to what I might need.  She respected that all I wanted was to listen to what was being said as they tried fruitlessly to revive Ailish.  The teenage nurse assigned to us on evenings and the charge nurse stood to the right of the ICU resident with the bedside table pulled over as they documented orders.  

 Somewhere in all of this the world's most insensitive, undereducated boob of a social worker entered the scene. Her role it seemed was to irritate me.  I was able silence her though how I am not sure.  It was possibly the aura around me that read "I hate social workers, my kid is dying, you need to get away from me or you will be next!"  I can't be sure.  

The orthopaedic surgeon on call came rushing into the room and introduced herself to me and said that Ailish's surgeon was on his way to the hospital.  I had also heard this from his resident earlier.  She also confirmed with me that I wanted to be in the room.

 Ailish's surgeon was next to fly in the room.  I remember his red coat and eyes that burned into mine as if saying "what the hell happened?"  He assessed the scene a bit and situated himself beside me on my right which was the left side of the bed.  He asked me if I wanted to remain in the room.  Immediately after that the on call doc had to make sure that the surgeon knew that she had asked me all ready so much so that she said it to him twice.   For some reason Ailish's surgeon spoke to the social worker saying something along the lines that Ailish had done so well etc etc.  What I wanted to scream at him was "quit talking to her I HATE HER! This has nothing to do with her!"  I didn't.  

All I could see of Ailish was her mid torso.  There were so many people in the room and afraid I would be forced to leave I stayed back and out of the way.  I only wish I had placed myself in a position to see Ailish's face or somewhere where I could have touched her.  There are no do overs in death and dying.

There was a general surgery resident on the right side of the bed ready and willing to perform any heroic measures in an attempt to save Ailish.  What he came up with was drastic and likely would have been a gruesome mess ("well you all better gown up" said the ICU resident) and a dead kid still would be the end result only now a carved up dead kid.  I will forever be grateful for him wanting to do it even though between Ailish's surgeon speaking to the mass of people and my acknowledging nod that the time was now to call the code and declare my beloved gone.

 That was the scene.  There of course were other honourable mentions such as the ICU attending who was kind, gentle but honest when giving almost a warning call when twenty minutes had passed with no response from Ailish that the end was coming.  She played a big role that night more so than just the overseeing of the code. 

 Those last moments, the events of the three days from surgery to death are the videos that play in my head on repeat maybe not as often as they did but they are there at the ready just awaiting the play button to be pushed by any number of triggers.  You know at the end of videos where you can watch bloopers and alternate scenes etc?  When the mental videos play that's when I think of all the things that I would have liked to have said and done.  There is of course the scene where the kid magically responds to the electrical shocks sent shooting through her body and medications coursing through her veins and wakes up right as rain and we leave the hospital in the five to seven days as originally planned...

Don't you hate it when a movie doesn't end the way you want it to?


The Bed
  
  




Friday, April 26, 2013

If only....

                                   If only she would would be coming home from school.

                                                  If only she were here for me to hold
If only I could hear her laughing


                                                                            If only

Wednesday, April 24, 2013

A vent

Have you ever had people in your life where you think, I would totally do the time if it meant you were no longer in my life?  I might be having a day I'm not sure.

I think in everyone's life we have those folks whether they be family members, employers, coworkers etc.  They really detract from our quality of life but for some of them we have no choice but to develop the skills to deal with them.  That would be the mature thing anyways.  Tonight I'm having a foot stomping, head banging just give me a half a bottle of ativan and I'll be fine time.

You would think you get to an age where more things roll off your back and you get riled up less by things.  To some extent that is true for me.  Unfortunately however I have become less tolerant of invasive pain in the ass type folks and definitely less willing to accept stupidity from people.  I'm not talking about the people who have come about their problems honestly and have a lower IQ.  I am talking about the honest to goodness I have no common sense, no consideration and big BIG boundary issues types.  Those are the ones I have a hit on at this ripe old age.

Maybe I should give sedation a try....

Monday, April 22, 2013

That's what she said

"Mommy I really want us to adopt a baby girl. Maybe we should get a breast feeding one". "Oh and who would feed it?" " Maybe you would because you have better boobs". Two things are important to remember about these statements;

1) it's not just me that would like a new baby  

2) I have better boobs


Thursday, April 18, 2013

dream....

In the last hours or minutes before the alarm went this morning I was dreaming about us preparing to attend my youngest's funeral.  It was the day of and it dawned on me that I had not informed some of my family members that he had died.

I'm sure there is a way longer blog post to this but it remains slightly early to be coherent.

Suffice it to say that though Prince H does have a tenuous hold on life if you listen to textbooks he is for the most part healthy in spite of his yucky fever and cold right now.

I know where the dream came from as I had read about a baby I had been following who had hydranencephaly (like Ailish) who passed away a couple of days ago and read it right before sleep.  The not telling people must be because the family chose not to be apart of the internet family for children with hydranencephaly and so we did not find out until last night.  We all cyberloved on this baby as we waited for her to find her forever family.

Sweet adorable baby Clara.  Find Ailish up there won't you and give her a giant squeeze and kiss from her mother.

Oh...and you won't be seeing my H up there for a really really really long time!

Wednesday, April 17, 2013

Oh Ya!



If an old style video camera fell on a foot in the forest would it still make a sound?

Hells to the ya it would and it would make enough sound to make the other trees blush!

Sunday, April 14, 2013

As it's Gala Season this might be worth repeating. Powerful Panties

It's gala season.  Perhaps we should revisit last years adventure last year's shopping.
This is a repeat post.





I am attending a gala in a couple of weeks.  This year it is a Medieval theme.  I am generally a party pooper where costumes are concerned.  Ever since I outgrew Halloween costumes lost their appeal for me except on children and occasionally the dog.  This then had me shopping last night for a dress.  I detest clothes shopping for myself.  It requires putting on items that have numbers on them and not just any numbers.  These digits have power Man.  They can serve to feed your ego or stomp it further into the ground than that of an acned, knock kneed, metal faced teenage girl.  Not only is there the number to contend with it is having to be locked in a room with one or more mirrors showing every knook and cranny of a body that has never caused you much pride and with the lighting in there...oh the lighting!  If you didn't think you looked old and haggard before let me tell you the combined effect of those mirrors and the lighting will have you sobbing in a heap faster than my dog poops on a clean unattended carpet!

So back to the dress.  I tried on three.  Two long and one short.  If I didn't look above the neck I thought they were all ok.  There was one I liked more than the others though.  Black, floor length, thick spaghetti straps (don't know if that's what you call them but so be it) and it was bedazzled.  The back was made of bedazzled straps.  It had me considering it in spite of its relatively high price tag.  It was what I would call slinky (call me a fashionista!).  It was smooth and pretty.  There was the problem...I am not smooth and well..let's say beauty is in the eye of the beholder.  I ventured out of the dressing room so that a salesclerk could help me with some ideas on lingerie liposuction.  What this miracle worker of a woman brought me was an item that was life changing. I was now an educated woman.  I had been schooled.  What was this wonder garment you query?  Well it was Spanx!

I know that I am far behind the well dressed population and probably the appropriately dressed and that if What Not to Wear was a show filmed in Canada I would be top on everyone's list to nominate (I'm glad it's not as it is REALLY hard to shop with eleven kids following me...) so I know Spanx is no secret to most.  Of course I had heard of them and might have even seen an entire Oprah show on them but never had I ventured so far as to put any on.  What's the point really as pyjama's hide a multitude of sins.

My life might have changed a little bit last night in the confines of that change room.  I poured my body into that undergarment which may or may not have required two sales girls and a maintenance man and there I was....smooth.  I had ne'er a lump.  Now balloons are smooth and round so don't think the Spanx hid all my sins but it was a step in the right direction.  But there was more....

Now you might be wondering...an entire post on an undergarment?  Yes because the best part has yet to be told!

I am single.  I have thirteen outstanding children with eleven living at home.  They love on me all day.  They like to be hugged, kissed, nuzzled, sat with, held etc.  I love it.  When I put on that Spanx last night though I found something that gave to me wanting nothing in return.  It squeezed me, warmed me and made me feel good about myself.  It didn't drool, sneeze, or pee on me nor did it leave clumps of fur on any part of me.  It was also considerate of any need I might have.  It provided me an exit strategy for any 'bizness' I might have.  Who knew underwear was capable of unconditional love?  My kids provide that same unconditional acceptance of me and my flaws and I adore every minute with them (there are times though....).  They think I'm beautiful and the best mommy evah (if asking them careful on what day you ask the teens).  There is just something different about a relationship with your underwear.

What was the shopping outcome you might wonder?  I left the store with nothing thinking I should perhaps give renting a costume some thought and attempt at becoming 'fun'.  I am a changed woman, willing to step out of my comfort zone if just maybe for an evening.

Thank yu Spanx.  Thank you.  I am indeed a "Powerful Woman" and should I chose I will wear "Powerful Panties"!o