Journey's underlying syndrome is trichorhinophalangeal syndrome type 1. In the literature it really has more of a skeletal impact though the anecdotal reports from those living with it implicate it as more of a multi system disorder. In posing the question on a mailing list I learned that those with the syndrome who have fractured bones all have had delayed bone healing. This has been the case with Journey for sure however there has been lymphedema and now this infection/noninfection. We are eight months past the fracture date.
|Look! For at least a few short minutes they weren't trying to kill each other!|